Passionate dad takes on Scafell Pike challenge for daughter with cystic fibrosis

Dad takes on challenge to raise crucial funds

A father from Heywood is gearing up to conquer Scafell Pike, England’s tallest peak, to raise crucial funds for the Cystic Fibrosis Trust.

Joe O’Neill’s four-year-old daughter battles the condition daily. Joined by colleagues from The Royal Toby in Rochdale and The Deckers Group in Chesterfield, the team aims to bolster research for the 10,900 people in the UK affected by cystic fibrosis.

Standing at 978 metres tall, the hike will be a real challenge for all the climbers, but Joe said it will be nothing compared to what Elsie has to go through.

Joe told Rochdale Online News: “Elsie is a firecracker. From the minute she gets up, she doesn’t stop moving and talking, but because of her condition, she is prone to illness much more than most other children.

“She’s doing well right now but last year had a two-week stint in hospital with an infection on her lungs. It can be stressful for her and those who love her.”

Elsie takes Trikafta – a triple combination therapy also known as Kaftrio - twice daily. It has been hailed as a ‘miracle’ cystic fibrosis treatment for children by significantly improving lung function, helping people with the condition breathe more easily and improve quality of life.

Joe added: “Cystic Fibrosis Trust has campaigned for years to get people on life-saving drugs like Trikafta. It also invests in cutting edge research to develop improved treatments and provides amazing support for people like Elsie.

“Since she has been born, life expectancy for people with the condition has increased significantly, but there is more to be done and the charity needs funds to do it.

“I’m grateful for the backing of everyone at The Royal Toby. Management has supported me as a parent who sometimes needs time off work to be there for my child.

They have paid for our entries to the walk and on Friday are donating a pound from every main meal sold to Cystic Fibrosis Trust. I have colleagues walking with me and others who have contributed to a bake sale to raise money.

“However, we are still seeking sponsorship outside of work, friends and family and would implore anyone who feels they could help to make a small donation.”

Joe lives in Heywood with wife Rachel, daughter Elsie and two-year-old son Oliver.

To sponsor Joe please donate at: justgiving.com/page/deckers-hospitality